TY - JOUR
T1 - Evaluation of the intermittent exotropia questionnaire using rasch analysis
AU - Pediatric Eye Disease Investigator Group
AU - Leske, David A.
AU - Holmes, Jonathan M.
AU - Michele Melia, B.
AU - Miller, Aaron
AU - Jackson, Jorie
AU - Suh, Donny
AU - Hayes, Susan
AU - Glaser, Stephen
AU - Pacheco, Monica
AU - Graham, Laura
AU - Paysse, Evelyn
AU - Yen, Kimberly
AU - Hussein, Mohamed
AU - Steinkuller, Paul
AU - Coats, David
AU - Kong, Lingkun
AU - Donahue, Sean
AU - Morrison, David
AU - Kehler, Lori Ann
AU - Estes, Robert
AU - Fraine, Lisa
AU - Petersen, David
AU - McMurtrey, J.
AU - Sala, Nicholas
AU - Romeo, Jeanine
AU - Crouch, Earl
AU - Ventura, Gaylord
AU - Mohney, Brian
AU - Yamada, Tomohiko
AU - Hatt, Sarah
AU - Nielsen, Rebecca
AU - Liebermann, Laura
AU - Superstein, Rosanne
AU - Belanger, Caroline
AU - Fallaha, Nicole
AU - Thibeault, Maryse
AU - Ticho, Benjamin
AU - Khammar, Alexander
AU - Allen, Megan
AU - Clausius, Deborah
AU - Hoover, Darren
AU - Huston, Pamela
AU - Enyedi, Laura
AU - Wallace, David
AU - Yanovitch, Tammy
AU - Jones, Sarah
AU - Silbert, David
AU - Matta, Noelle
AU - Weaver, Richard
AU - Bade, Annette
N1 - This study was presented in part at the Association for Vision in Research and Ophthalmology Annual Meeting; May 9, 2012; Fort Lauderdale, Florida.
PY - 2015/4/1
Y1 - 2015/4/1
N2 - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.
AB - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.
UR - https://www.scopus.com/pages/publications/84928248681
UR - https://www.scopus.com/pages/publications/84928248681#tab=citedBy
U2 - 10.1001/jamaophthalmol.2014.5622
DO - 10.1001/jamaophthalmol.2014.5622
M3 - Article
C2 - 25634146
AN - SCOPUS:84928248681
SN - 2168-6165
VL - 133
SP - 461
EP - 465
JO - JAMA Ophthalmology
JF - JAMA Ophthalmology
IS - 4
ER -