Occupational Therapy’s Needs Assessment for Service Navigation for Children with Autism

  • Kristina Lauren Paula

Student thesis: Doctoral ThesisDoctor of Philosophy

Abstract

Background. This capstone project brings to our attention the importance of occupational therapy’s role in meeting the continued needs of children with autism. As the prevalence of autism spectrum disorders (ASD) continues to increase, so does the disparity in the accessibility of services for children and their families. Therefore, it is imperative to facilitate a diagnostic process and identify the child’s specific needs, to implement early intervention strategies. The medical model of disability, an internationally recognized approach in diagnosing children withautism, views autism as a problem that individually belongs to the child. Although the current medical model is preferred by medical professionals during the diagnostic process, children are diagnosed later in life compared to when early signs of autism are noticed. Purpose. The purpose of this needs assessment was to explore the barriers associated with identifying children with autism, which could potentially impact children’s ability to access early interventions; and to utilize the knowledge gained to examine the potential for occupationaltherapy’s role in diagnosing autism, specifically towards advocating for early diagnosis. Method. An Family-Centered Care system and Occupation-Centered Assessment with Children framework were used to explore the gaps in identifying autism, which impacts occupational engagement. A survey flyer was posted on open-group autism-specific Facebook forums. Using a mixed-methods design, surveys from caregivers of children with autism in Miami-Dade County were analyzed using Survey Monkey. Results. The results of these analyzes indicated there is a delay from noticeable red flags of autism to when the child is diagnosed, caregiver dissatisfaction, and health care provider and caregiver lack of autism knowledge. Discussion. This capstone project proposes program development to improve autism education, awareness, advocacy, and self-empowerment. Details of the problem, solutions, proposed program, and implications for the future will be presented.
Date of AwardJan 1 2020
Original languageEnglish
SupervisorDebra Misrahi (Supervisor)

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